Duchenne Deutschland

Insights into and entry into the Duchenne Germany network

Duchenne Germany gives affected children and parents full attention for a better quality of life.

We go public and give an insight into the course of Duchenne muscular dystrophy - show abnormalities and typical developments, report on functional losses, address social issues and show how valuable life is. Together we promote more acceptance and self-determination for people with Duchenne muscular dystrophy….

... a fateful diagnosis that goes far beyond the understanding of medicine and science - incurable, hardly treatable, progressive and yet worth living. Boys mainly suffer from this muscle disorder. The symptoms are clear, but difficult to identify as Duchenne for many doctors due to their rarity.