Annual Family Conference

BDSRA’s Annual Family Conference creates a strong community of support for families impacted by Batten disease. It is the premier forum in North America for Batten disease family support, education, scientific presentations, networking and research participation. Gain access to experts, research posters, answers to your pressing questions, connect with other parents, and attend sessions virtually! Each member of the family will be able to engage in a meaningful way from the comfort of your own home.